Waiting...that seems to be a word that comes up a lot in my daily vocabulary, so does doctor, appointment, results, and worrying.
Sometimes I wonder what my recovery process would be like if I had developed more symptoms like some of the other girls I have met through the Facebook support group. Because I am still having severe pain and my most recent MRA scan shows my artery is occluded 50 percent, I wonder what I would be going through if I had developed neurological symptoms on top of everything else. Would the pain be worse? Would my artery be closed up even more? These are all just a few of the questions that have been going through my head since my most recent scans from a little over two weeks ago. Especially since Dr. Thompson says he will nto operate until I am 80 percent occluded. Which scares me...I do not want to even have a possibility of having to go through this process all over again.
So, as I stated earlier, my scans are not what I would like them to be. I was supposed to have a CT Scan but because I have been put through so much radiation in less than a year the techs, doctors, and nurses did not want to do anymore tests if they did not have to. Therefore, I had an MRA and MRI scan which was fine but just involved a lot of waiting around at the hospital.
As most of you probably know, I celebrated my 22 birthday on Friday, April 1. However, tonight was my family celebration...and of course after eating dinner I immediately was in the bathroom feeling like I was going to be sick and curled up because my stomach was hurting so bad. It is embarrassing to be in a restaurant and have to run to the bathroom or curl up and look uncomfortable in a nice restaurant.
On a different note, I am still working on trying to spread the word about MALS. I am determined to help other girls who might be suffering. My capstone is almost done and hopefully it will help me make some headway to spread the word!
Keep your fingers crossed!
