Friday, February 25, 2011

Three Months Post Surgery

I went to the doctor yesterday for my three month check up. Things did not go quite as well as I had hoped.  I have been having  a little bit of pain on my right hand side that has progressively gotten worse. However, since my last post, I have ran my first 5K and performed with the dance team for the last 4 games (last night was our last game). Apparently I have pushed myself a little too hard with all the dancing and extra activity I have been doing. So, I was told to not dance for awhile and just stick with walking. My weight restriction has been lifted in terms of my incision, but because of the pain I am already having I have to watch the amount of weight I lift. So, I am not really off the restriction but atleast I can push a grocery cart. haha. Because of the pain I am still experiencing, they went ahead and drew my blood to make sure my liver is working properly, even though they feel it is just a pulled muscle from me pushing it just a little too much. My incision looks really good, it is completely closed up. So while my appointment did not go as well as I hoped, atleast there was some good news. I thought I would be released at yesterday's appointment but because of my pain, I wasn't. I have to go back in two months.

On a different note, I am currently trying to raise awareness about MALS so that other girls do not have to experience the pain I went through for years. I only hope that I can get people to listen and help me spread the word about this uncommon medical issue.

Wednesday, February 16, 2011

A Little Update

Sorry it has been so long since I have written. I am currently back at school. I have still had some days where I either do not make it to campus at all and other days where I make it to campus but end up going back home. I still do not eat that much. I weigh myself everyday and I fluctuate between 114 and 120. Today, I am 114.5. It is kind of scary how much weight I have lost since I actually had the surgery. But at the same time I eat one meal, maybe two. . .and that is on a good day. I can sometimes go a whole day before realizing that I have not eaten. I am just not hungry at all. End of story.

I have been allowed to go back to activity. I am walking up to six miles every day and running about 1.5. Running still gets to me, I am not exactly sure why. I am back to dancing on the Stephens Dance Team. Which is just the most fun I have had in quite a long time. In the dance we are practicing for the last basketball game, I grab my leg, pull it to my head and do a turn. It is an amazing feeling to be able to do that again. Granted, I get really unbelievably sore after every practice because I am using all these muscles that I have not been able to use since before surgery. But it is an amazing feeling to be able to do it again. My first performance was Saturday, February 12 and the night before I had this nightmare that had my incision ripping open when I was performing at the basketball game. It sounds gross, but the nightmare had me up the rest of the night wondering how everything was going to go. So when it actually came time to perform, I was really nervous but being able to do it again was a fantastic feeling.

 It is still depressing when it comes to dealing with activities that were planned last semester when I was missing so many classes, and I still get some sort of special treatment with all my classes and activities. While the "special treatment" helps me a little bit when it comes to classes, it isn't what I want. I just wish everything could go back to normal. I am still dealing with "depression" type issues. When I get dressed in the morning, I find myself crying just seeing the scar. Or when everyone starts looking for swimsuits and I still just have to look for one pieces so that my scar does not show in the sunlight. It is one of those things that I am glad everything has gotten figured out and hopefully fixed, but at the same time, it is sad when I am missing things that I would normally do. But you know, take what you can get and if I do not have to have pain for the rest of my life, then I just have to keep telling myself the scar is the little price I have to pay to live a pain free life.