Yesterday afternoon I was moved to a regular room. They also removed my heart monitor. My good friend Chelsey and her boyfriend Jeff came to visit me. It was nice to see friendly faces and to talk about something other than what was going on with my health.
At present I am in a room by myself but there is another bed if needed. I still have the pumps on my legs to prevent blood clots and I am on the pain pump but they are talking about changing it to oral medication. I have been getting heparin injections in my belly 3 times a day since surgery. I still have daily blood draws. I have never liked needles but since surviving surgery I feel like I can handle the needles. I am still doing my hourly breathing exercises. The Drs have made rounds and I now get to have ice chips and clear liquids. I was really excited to get that news, but after 2 bites of a popsicle I was full.
My mom's friend, Judy, who found the original newspaper article about MALS, called the news reporter who wrote the article and left her name and number to be passed to the patient, Courtney and her mom, Marsha. Judy received a phone call Friday night from Marsha. She was very excited to know their article had helped another girl. Marsha was very happy that I had my surgery done at Barnes Jewish Hospital with Dr Thompson because after Courtney had laparoscopic surgery in Chicago, it reoccluded and the end result was Dr Thompson, my Dr, did abdominal surgery to fix it. It was the same procedure I had so I feel I chose the right path.
My mom and Marsha have visited on the phone and we both feel relieved and excited to have someone who truly knows what we have been going through as a patient and as a mom. We plan to keep in touch with them. Courtney and her mom increased public awareness of MALS by the newspaper article which I will be forever grateful for, and my mom and I are currently trying to think of a fundraiser to help increase public awareness as well.
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